I’ve been wanting to write a long (loooong) post, but I’m just so exhausted by the end of the day. Growing a baby is tiring enough in normal circumstances… Here are some short updates.
- Devin is doing generally well. The leukaemia he has is the most common, and most responsive to treatment, and for that I am very thankful. I know there are parents at the hospital who wish their children have what Devin has…
- We’ve been in Sydney for two months now, without leave. Ten days in hospital, one week in a Leukaemia Foundation unit, and six weeks and counting at Ronald McDonald House. It is… difficult in the house. I’m struggling here. But that’s for another time.
- The treatment schedule is quite variable and they don’t tell us what each stage involves and when it will happen until we have finished the one before it. We can’t plan for anything. At the moment, we’ve been set back two weeks because Devin’s blood counts have been too low for chemotherapy. And that’s the catch-22 with the treatment – chemo destroys the cancer so the bone marrow can produce normal blood cells again, but chemo also destroys other fast-growing cells like hair and… normal blood cells. Transfusions are a fact of life for patients, and never have I ever been more grateful for the people who donate their blood. I’ve only ever donated whole blood, but will make it my mission to donate platelets and plasma when I am able to again.
- Steroids are the most awful and useful drugs.
- Most of the medications in the treatment are given to counteract the ill-effects of other medications, and it starts to feel absurd.
- We’ve been getting incredible support from lots of people, especially family and friends who are organising fundraising (and doing an overwhelmingly good job at it), and my online mother’s group. I ‘met’ those ladies over four years ago, and never did I think the group would become what it has. Very, very special.
- I’m 21 weeks pregnant now, and we know that baby is a healthy little girl! I had absolutely no preference for a daughter or another son, but I did have a feeling she was a she. We are all excited… and maybe somewhat nervous.
Obviously this is just the very tip of an emotional few months, but since I’m now typing this with one hand while prostrate in bed, I’ll have to leave it there.